my darling little baby

my darling little baby,
I wish I could look inside,
and find the things that cause you pain,
and toss them all outside,
I know you want,
to crawl and play,
but your body lets you down,
I know you have a spirit,
that can soar above the clouds,
mommy knows how strong you are,
you make mommy so proud,
mommy needs to be strong too,
and you have shown me how.

inspired by Afidah Ayob (posted in Malaysian Advocates for CP)...

My child has CP

Children with CP
It is indeed difficult to hear your child has a disability; I still struggle with it everyday. I am past the guilt stage; I am proactive in my child's education every step of the way. Any human being would certainly feel loss for their child's future but you have to learn to accept reality and help your child in becoming an productive citizens. It is a lot of work and sometime I am just so exhausted, but at the end of the day, I wouldn't trade any of it!! My child is who my child is and the disability end of it gives me so much purpose in life, a renewed energy, and a whole new outlook on life. Yes, I wonder why my child at times, but then I remember all the great things my baby does to make me smile and keep going day to day. I no longer take anything for granted or that it is a given. When I feel like I want to give up or give in, I look at my baby and I instantly snap out of it cause if I give up, I give up on my child also. The greatest reward? Success won through a challenge!!
—Guest lele

Syahmie

Dear Allah,

Don’t let anything happen to me because I have to be able to take care of Syahmie. Don’t let him die young because I can’t bear to lose him — but don’t let him outlive me, because who will take care of him when I am gone.....

bizi like a bee...

Lately ni bizi nyer. Have not got enough sleep.. Windu nyer kat all the kids.
Must catch up all those missing days.. Ya Allah, berikan ku lebih masa untuk bersama mereka...

Mommy sayang Along, Acik & Kakak ketat-ketat..hihihi..

Alolololo...my pretty boy.. Mommy windu sgt kat Adik..

Windu kat ayah juga...haishh..

Set Appointment for Syahmie at Dr. Sham Physiotherapy Centre

I have set an appointment for Syahmie at Dr. Sham Physiotherapy Centre, Plaza Pekeliling, Jln Tun Razak. We will see Ms Karen at 11 am, Monday next week. Ms Karen sounds very friendly & caring to me.. Hope to see her soon enough. Semoga ada harapan baru buat Syahmie, syurga kasihku...